What does nesting look
like in our house? Well, it started
early as the second semester energy kicked in and now is starting to taper off
at 34 weeks. Yes, we are putting together
a new nursery (updating what was Daniel and then Andrew’s nursery and planning
to move Andrew into Daniel’s room whenever we get up the courage!)… because who
says you can’t have a little fun even if you are having another boy. :) And we all know that nurseries are for the
moms anyways, so the new whale theme is giving me a lot of joy. I am sure our newest addition will be
thrilled as well. Haha.
However, my nesting can be
best summed up by my insane energetic attempts to tackle everything on
my list for John before our deadline this new baby boy arrives. And yes, I have an actual list of all ideas,
present and future, that may be helpful to try where John is concerned. I tuck away notes and ideas from doctors and
therapists, but mainly from other moms in similar positions. And then when I have spurts of energy and
determination, I basically read over the list and pray God will guide me as to
whether or not it is the right time to pursue any of these items. I cannot say our decision process has always
been like this nor is it always like this now… However, over time, I do feel we
have been able to pursue the next steps for John with open hands, freedom and
trust in God’s leading rather than tackling one thing after the next out of
fear, striving, and anxiety. This makes a BIG difference.
Two key endeavors have
been undertaken since May with another being implemented tomorrow. I will skip to what is happening tomorrow
so you can be praying!! John and
Meade are currently in New Jersey where John will be put to sleep tomorrow and
undergo a procedure on his legs called Selective Percutaneous Myofascial
Lengthening (SPML). It is minimally
invasive using punctures in the leg rather than any cutting, however he will be
bruised for a bit and have casts below his knees for 3-4 weeks. This will not limit him from participating in
his therapies or school. It was quite
emotional sending them off yesterday, as this is the first big thing in John’s
life I will not be physically present for, given that I am too far along to
travel now. But can I just say how
incredibly grateful I am for my husband who is the BEST dad and I know has it
all under control even without the control-freak by his side? :)
We have heard this
procedure is pretty amazing, especially for the tightness that comes for so
many children with cerebral palsy, so we are excited to see how the Lord uses
it in John’s life. The hope is that it
will help relieve much of the tension caused by the hypertonicity
targeting the groin area, hamstrings and heels and allow his therapies to be
more effective. An alcohol block is also used around the groin to
determine how to best enable each leg to dissociate from the other, so they can have the ability to no longer just move as a unit but can move separately which
is key to activities such as crawling and walking. This should also improve his posture, in that
the hamstrings are very connected to the buttocks and back muscles. Many end up having a carry over
effect, also releasing the muscles in their arms. That would be awesome!
Thank you for praying for the procedure tomorrow (Tuesday, September 1st), for John’s
recovery, and for the next steps that need to follow the procedure… for timing
and guidance as it relates to our October 13th due date! So grateful for each one of you, our
faithful friends on this journey! I will
try to post an update later this week along with additional information on our
summer of nesting.
"Now to Him
who is able to do far more abundantly than all that we ask or think, according
to the power at work within us, to Him be glory in the church and in Christ
Jesus throughout all generations, forever and ever. Amen."
-Ephesians 3:20-21
-Ephesians 3:20-21
